Friday, August 7, 2009

Update on Jamie's appointment

So here's what we know so far:

Dr. K. called and left a voicemail on my cell. I was trying to call into the local radio station to win movie tickets and missed his call. *sigh*

Jamie is apparently still having apnea episodes. According to the report, he had 24 desaturations during the nine hour period that he was monitored last night. While this shows improvement (the last time we monitored in this manner he had around 32), he is still doing it far more than he should. Having 10 or less desats during a sleep cycle is considered normal. Each apnea episode does not necessarily trigger a desaturation, so we have no idea how often he actually stops breathing. We'd need to do another sleep study to figure THAT out. Ick.

Anyway, at this point the recommendation is that he continue to be monitored. I will call Dr. K. on Monday to see if I can get a copy of the report. Brad and I would also like to know how far his oxygen levels dropped. Last time he dropped to the mid-80 percent range and we are curious to find out if that has gotten better at all.

I was really hoping that we'd hear that he no longer showed signs of apnea. I was SURE that I'd have to fight to keep the monitors and prepared to do so. Guess that won't be necessary.

Truth is, I'd rather fight for monitors we don't need than to hear that my boy continues to stop breathing in the night. Today's news was so disheartening. I almost miss those days now when the docs would look at us and shrug and tell us they couldn't find anything.

So, for now I'll do what I've been doing. I'll take care of him and keep him safe. He will continue to be happy and healthy and growing and strong and smart...and I'll try not to worry so much.

This too shall pass.



9 comments:

Jules said...

Stay strong, that little guy needs you. I'll be thinking of you and your family.

Hey, there. I'm Kami. said...

Babe, I'm so sorry! How terrifying. Hang in there. Maybe he just needs to grow a little bigger so his nasal passage widens enough to curb the apnea. But, I mean, I'm just a self-proclaimed MD...

Laura said...

Hang in there Mommy, you're doing great! I also am hoping this is something that he can "grow out of" did they say that at all? This WILL pass and your little man will do great!

Blessedw5mom said...

Jo, you are such a great mommy! Jamie is blessed to have you! We will continue to pray for you. And soon we need to have a playdate!

Joe @ IrrationalDad said...

Damn. I don't know what to say, because I just don't know how things will pan out. But I'm hoping!

Amanda said...

JO!! I am lifting your family up in prayer right now!! Ok done. But I will do it again and again!!

I am so sorry to hear of your news... anything I can do to help?? You just let me know!!

You are such a great mommy... stay strong girl!

Blessings~
Amanda

Sunshine Mama said...

It sounds like if he does stop breathing, the monitors will alert you? Or maybe they don't if the oxygen saturation isn't at a low enough level? You guys are in our prayers.

Amanda said...

Just dropped by to let you know I'm thinking of you...

Have a blessed day~
Amanda

tracy said...

I'm so sorry! Just remember all this "care & worry & sleepless nights" you can hold over his head when he's older ;)

Tracy